Wednesday, September 21, 2016

Table of Contents for All the Schwannoma Survivors & Schwannoma Fighters Articles


Hello all!  Today I am pleased to publish this index of all the Schwannoma Survivors blog-articles.  This table of contents we hope will serve as a guide for those who may wish to search through immediately and find the blog or support article that may best suit them.  We have currently published over 70 articles, case studies, commentaries, physician Q and A's - and various other helpful bits of information.  We hope you find that this assists you on your journey - and if you yourself feel that you have experience that will help expand our knowledge on Schwannomas, particularly relating to those kinds of Schwannomas that are quite rare - feel free to contact me at neilmyersart@gmail.com and I'd love to hear from you.

Bear in mind that this index is created to stack the most critical and most used articles first, and then you can page through the various other subjects under the headings as you page downward.

I urge you if you have found this table of contents helpful, then please give it a Google + 1 , or feel free to recommend it to a friend who may need this info.  As with all things relating to our blog and Facebook page, the contents will continue to change and be modified wherever they can be improved.  And some of the organization of the blogs in this index may be changed in the future as well.  But for the moment, it is enough to get this online so that it can be of service to those who need it.

Wishing you all much strength and a pain free day!

Neil - founder of the Schwannoma Survivors & Schwannoma Fighters FB page and blog

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 Important Articles for Those who are Newly Diagnosed


What to ask the doctor if you have just been diagnosed with a Schwannoma.


¿Qué preguntarle al doctor si has sido diagnosticado con un Schwannoma?


Que Devrait-on Demander au Médecin si on Vient Juste d’être Diagnostiqué Avec un Schwannome? ( French )


被确鞘瘤后一些要医生的问题

What to ask blog – in Mandarin

Recommended Physicians Who Have Taken Good Care of Us, from the Schwannoma Survivors


Schwannoma Survivor Support Page; Email Contacts for Those Newly Diagnosed With Schwannomas


Here Are Other Facebook Pages Dealing With Schwannomas



What to ask the doctor if you have just been diagnosed with Acoustic Neuroma



Physicians Who Have Taken Good Care of Us - Recommended Physicians for Acoustic Neuroma Patients



An Introduction to Schwannomas - Some Basic Facts About Schwannomas for Those Who Are Newly Diagnosed


Una introducción a los Schwannomas - Algunos datos básicos sobre los Schwannomas para aquellos que recién han sido diagnosticados (Spanish)



Alguns Fatos Básicos Sobre Schwannomas Para Aqueles que são Diagnosticados com Esses Tumors (Portuguese )


鞘瘤 - 被新确的神鞘瘤患者的基本知

 Basic Facts blog – Mandarin


A Short Q and A with Dr George Jallo - Answering Some Basic Questions About Schwannomas



A Q and A with Dr Allen Maniker, Chief of Neurosurgery at Beth Israel Medical Center




 Q and A with Dr Alfred Ogden, Columbia University Medical Center




A Q and A with Dr Christopher Moertel, Pediatric Neuro-oncologist at University of Minnesota Masonic Children's Hospital



Q and A on Schwannomas with Dr. Bohdan Chopko, from Stanford University Medicine



"Where do You See The Future of Schwannoma Treatment and Research Going?" Three Neurosurgeons Weigh in on the Question




Acoustic Neuroma Pages

What to Ask the Doctor if You Have Just Been Diagnosed With Acoustic Neuroma



How Long Before I Feel Better After Acoustic Neuroma / Vestibular Schwannoma?


Schwannoma Case Study # 10, Scott Sarah and The Story of His Acoustic Neuroma / Vestibular Schwannoma



Schwannoma Case Study #8, Kayla Collins and her Battle with Acoustic Neuroma / Vestibular Schwannoma



A Letter with Info on the After-Surgery Phase, for Acoustic Neuroma Survivors



Cognitive Difficulties ARE Sometimes Mentioned After Acoustic Neuroma / Vestibular Schwannoma Surgery



Paranasal Schwanoma Articles

Case Study # 23 , Dani Thomas Shares the Story of Her Paranasal Sinus / Sphenoid Schwannoma





 Vagal Schwannoma Articles

Case Study # 17, Lori Cramton Tells us About her Vagal Schwannoma (Tenth Cranial Nerve) Removal


Intracapsular Enucleation, A Short Blog on a Promising Treatment - Especially for Vagal Schwannomas


Trigeminal Schwannoma Articles

Schwannoma Case Study #9, Lauren Findlay and the Story of Her Trigeminal Schwannoma


Orbital Schwannoma Articles

Case Study # 16, Susan Hicks and the Story of Her Left Orbital Schwannoma


Cervical Schwannoma Articles

How Long Before I Felt Better After Cervical Schwannoma?



Case Study # 22, Diane Schuler and Her Experience with Cervical Schwanoma




Thoracic Schwannoma Articles

How Long Before I Felt Better After Thoracic Spinal Schwannoma?



Schwannoma Case Study #11, Gina Forde and the Story of Her Thoracic Spinal Cord Schwannoma





Lumbar Schwannoma Articles

How Long Before I Feel Better After Lumbar Spinal Schwannoma?


Schwannoma Case Study # 12, Carol Zwick and the Story of Her Lumbar Spinal Cord Schwannoma


Schwannoma Case Study # 1, Lumbar Schwannoma at L 5 S 1 , with Regrowth, Requiring Three Surgeries


Schwannoma Case Study # 6, Bart Johnson, Schwannoma Located on the Posterior Side of L4 - Schwannoma not yet Removed



 Schwannoma Case Study # 7, Anonymous Person with Schwannoma at L2-L3, with Partial Removal




Sacral Schwannoma Articles

Case Study #24, an Anonymous Person with Pre-Sacral Schwannoma



Retreoperoneal Schwannoma Articles

Schwannoma Case Study #15, Tina Baker, and the story of her Retroperitoneal Schwannoma


How Long Before I Feel Better After a Schwannoma in the Torso?



Brachial Plexus Schwannoma Articles

Case Study # 14 Nick Nichols and the Story of his Brachial Plexus Schwannoma


How Long Before I Feel Better After a Schwannoma in the Torso?




Articles Dealing With Schwannomas Located in an Arm or Leg

How Long Before I Feel Better After a Schwannoma in an Arm or Leg?



Case Study # 19, Carol Jackson and the Story of Her Sciatic Nerve Schwannoma



 Case Study # 18, Anonymous Person With Deep Peroneal Nerve Schwannoma



Case Study # 21, Recovery from Schwannomas Removed From the Back of the Knee



Schwannoma Case Study #5, Tiffany Heronimus, Schwannoma in the Left Elbow



 Schwannoma Case Study # 13, Susan Chapman Ruggiero & The Story of a Schwannoma in her Foot



Articles on Schwannomatosis

How Long Before I feel better? - Views on Schwannomatosis



Schwannoma Case Study # 3, Sean Anderson Tells us About his Fight With Schwannomatosis


Schwannoma Case Study #4, Another Case Study of a Person Confirmed with Schwannomatosis



Other Important Schwannoma Articles

Case Study # 20, Recovery from Schwannomas at C 7 and at T 8


Schwannoma Case Study # 2, Kris Sres, with Posterior Mediastinal Schwannoma, Lower Esophagus


How Long Before I Feel Better? Views on Recovery from Various Schwannomas


How Did a Schwannoma Feel Different than Regular Back Pain?



A Second Perspective - How Does a Schwannoma Feel Different than Normal Back Pain? A 2nd Answer, from a Person Currently Fighting a Schwannoma



Recovery is Not a Two Lane Highway



Progress Report After Schwannoma Surgery, Four Months Later, by Jamie Dubinsky


The Time Before Schwannoma Surgery, by Vitor De Souza Carneiro


Sailing the High Seas - The Crossing to Recovery, by Vitor De Souza Carneiro

Featured Medical Papers on the Study of Schwannomas





Schwannomas – Articles Dealing with Emotional and Mental Support


Schwannomas, a Story of Discounted Tumors and Misunderstood Pain


A Q and A with Dr. Anne Barnes, Psychiatrist, on the Mental Aspects of Dealing With Schwannomas & Chronic Pain


We Don't Play Doctor - But We DO Have a Role


Schwannomas and Anxiety



The First Time I Have Heard the Word Schwannoma on the Big Screen, Thoughts on the Film "50 / 50"



Living with the Axe Over Your Head


Moral Support, Surviving Schwannomas With the Help of Family and Friends


Having a Tumor and Chosing Not to Have it Removed

http://schwannomasurvivorsandfighters.blogspot.com/2013/02/having-tumor-and-chosing-not-to-have-it.html


If you would like to contribute your experience to assist others with Schwannomas - or if you would like to do a case study, please feel free to email: neilmyersart@gmail.com, and let me know your story! - Neil 























































Tuesday, September 6, 2016

A Proposal - The Schwannoma Statistics Project

Hello everyone!  Today I wanted to outline an idea that has come about as a result of my work with the Schwannoma Survivors & Schwannoma Fighters group.  A great many people who have suffered with Schwannomas have endured a lot of confusion - and even have gone through treatment still with many questions unanswered.  So today, I wanted to propose a worthy idea to any medical institution or university that may wish to contribute to our knowledge on Schwannomas...

I would like to propose a "Schwannoma Statistics Project."  I would like to see a medical facility or university create and monitor a universal database on Schwannoma statics.  It would be my hope that such a medical facility or university would create a questionnaire for Schwannoma survivors that would glean as much medical information about Schwannomas as possible - from the many survivors that we have spoken with on our page and elsewhere.   And the answers would supply data for the database.

It would be my hope that:

1)  A "Schwannoma Statistics Project" ( or SSP ) would gather accurate, universal data that would allow people to answer basic questions like "How common are Schwannomas?"  or " What are the average sizes of Schwannomas in various parts of the body?"  or "How common are they in the population?"

2)  I would propose that any SSP should share its data with other research and medical facilities that are seeking to learn more about Schwannomas.

3)  I would hope that specialized questionnaires may be created to service data relating to the condition of Schwannomatosis, and that as much data on Schwannomatosis would be acquired as possible - with a view towards devising new treatments and new understanding of the condition.

4)  I would hope that the SSP would help supply data for any medical specialist writing papers on Schwannomas.

5)  I would hope that the SSP would perhaps be able to glean enough data to try to actually pinpoint the usually unknown causes of single Schwannomas.  And perhaps even supply information for future genetic testing which may help establish if there are any genetic abnormalities or mutations that would result in a person developing a single schwannoma - rather than Schwannomatosis.

6)  I would hope that the SSP could possibly help determine if there are any environmental factors that help contribute to having a Schwannoma - which are as yet unknown.

I invite any knowledgeable medical practitioner or specialist to consider creating such a database.  I feel certain that it would greatly help the medical establishment in future research, and ultimately future treatments for those with Schwannomas.

Anyone is free to take this idea and run with it.  And myself, and many others at the SS and SF page will happily support any effort to make these tumors better understood.

- Neil
Coordinator of the SS and SF page