_________________________________________________________________________
1) How old were you at the time of your diagnosis?
43
2) Do you have any history of
Schwannomas in your family?
Nothing that I know of.
3) Where was your Schwannoma located? And what were the
symptoms that lead to your diagnosis?
Located in posterior
mediastinal, grew out from out layer of the lower esophagus, right behind the heart.
Only symptom is swallowing difficulty.
4) Could you describe, in whatever
detail possible, what kind of surgical treatment was performed on your
Schwannoma, and if you would consider it successful? (Or describe what you may
know about the surgery that may yet be performed, if you haven't been operated
on yet)
Based on two surgeons
I visited, "keyhole surgery is less likely due to the odd location",
open chest surgery is most likely. Might be possible to perform the surgery
from my left side even though the tumor is on right side of the esophagus.
5)
Having
gone through the experience, what do you think are the most critical questions
for someone to ask their doctor about surgery and treatment of this kind of Schwannoma?
Always ask what the
options are for the treatment, what is the percentage of the complication
after/during the surgery, what are the possible complications, what is the
percentage of the tumor regrowth, if it's possible to treat it without
surgery.
6)
Can
you describe what the recovery process was like for you – if you feel you
have made a positive recovery…and what things you have done that have been of
most help to you? (Also, you are free to describe what doctors tell you
to expect from your recovery if you haven't been in surgery yet)
What I could expect
from recovery: leakage when I swallow at the point where stomach is connect
with my throat as there is a chance they have to cut my esophagus during the
surgery then pull my stomach up to connect to throat; possible lung
complication as they will need to deflate one lung as least...Those are only
what I remember ... didn't really try memorize the rest -:)
7) Are you able
to do all or most the things you did before? (Also feel free to describe your
abilities even if you are still living with the tumor or tumors)
Yes, I'm able to do
everything I can before I learned I had a tumor -:) only thing I do little
different is I have to eat slow...