Table of Contents for All the Schwannoma Survivors & Schwannoma Fighters Articles

Hello all!  Today I am pleased to publish this index of all the Schwannoma Survivors blog-articles.  This table of contents we hope will serve as a guide for those who may wish to search through immediately and find the blog or support article that may best suit them.  We have currently published over 70 articles, case studies, commentaries, physician Q and A's - and various other helpful bits of information.  We hope you find that this assists you on your journey - and if you yourself feel that you have experience that will help expand our knowledge on Schwannomas, particularly relating to those kinds of Schwannomas that are quite rare - feel free to contact me at neilmyersart@gmail.com and I'd love to hear from you.

Bear in mind that this index is created to stack the most critical and most used articles first, and then you can page through the various other subjects under the headings as you page downward.

I urge you if you have found this table of contents helpful, then please give it a Google + 1 , or feel free to recommend it to a friend who may need this info.  As with all things relating to our blog and Facebook page, the contents will continue to change and be modified wherever they can be improved.  And some of the organization of the blogs in this index may be changed in the future as well.  But for the moment, it is enough to get this online so that it can be of service to those who need it.

Wishing you all much strength and a pain free day!

Neil - founder of the Schwannoma Survivors & Schwannoma Fighters FB page and blog

_______________________________________________________

 Important Articles for Those who are Newly Diagnosed

What to ask the doctor if you have just been diagnosed with a Schwannoma.

http://schwannomasurvivorsandfighters.blogspot.com/2014/06/what-to-ask-doctor-if-you-have-just.html

¿Qué preguntarle al doctor si has sido diagnosticado con un Schwannoma?

http://schwannomasurvivorsandfighters.blogspot.com/2015/03/que-preguntarle-al-doctor-si-has-sido.html

Que Devrait-on Demander au Médecin si on Vient Juste d’être Diagnostiqué Avec un Schwannome? ( French )

http://schwannomasurvivorsandfighters.blogspot.com/2015/05/que-devrait-on-demander-au-medecin-si.html

被确诊神经鞘瘤后一些要问医生的问题：

http://schwannomasurvivorsandfighters.blogspot.com/2015/03/what-to-ask-doctor-if-you-have-just.html

What to ask blog – in Mandarin

Recommended Physicians Who Have Taken Good Care of Us, from the Schwannoma Survivors

http://schwannomasurvivorsandfighters.blogspot.com/2014/01/recommended-physicians-who-have-taken.html

Schwannoma Survivor Support Page; Email Contacts for Those Newly Diagnosed With Schwannomas

http://schwannomasurvivorsandfighters.blogspot.com/2016/05/schwannoma-survivor-support-page-email.html

Here Are Other Facebook Pages Dealing With Schwannomas

http://schwannomasurvivorsandfighters.blogspot.com/2015/06/here-are-other-facebook-pages-dealing.html

What to ask the doctor if you have just been diagnosed with Acoustic Neuroma

http://schwannomasurvivorsandfighters.blogspot.com/2015/11/what-to-ask-doctor-if-you-have-just.html

Physicians Who Have Taken Good Care of Us - Recommended Physicians for Acoustic Neuroma Patients

http://schwannomasurvivorsandfighters.blogspot.com/2015/09/physicians-who-have-taken-good-care-of.html

An Introduction to Schwannomas - Some Basic Facts About Schwannomas for Those Who Are Newly Diagnosed

http://schwannomasurvivorsandfighters.blogspot.com/2014/06/schwannomas-for-dummies-some-basic.html

Una introducción a los Schwannomas - Algunos datos básicos sobre los Schwannomas para aquellos que recién han sido diagnosticados (Spanish)

http://schwannomasurvivorsandfighters.blogspot.com/2016/03/una-introduccion-los-schwannomas.html

Alguns Fatos Básicos Sobre Schwannomas Para Aqueles que são Diagnosticados com Esses Tumors (Portuguese )

http://schwannomasurvivorsandfighters.blogspot.com/2015/05/alguns-fatos-basicos-sobre-schwannomas.html

神经鞘瘤简介 - 给被新确诊的神经鞘瘤患者的基本知识

http://schwannomasurvivorsandfighters.blogspot.com/2016/02/blog-post.html

 Basic Facts blog – Mandarin

A Short Q and A with Dr George Jallo - Answering Some Basic Questions About Schwannomas

http://schwannomasurvivorsandfighters.blogspot.com/2013/06/a-short-q-and-with-dr-george-jallo.html

A Q and A with Dr Allen Maniker, Chief of Neurosurgery at Beth Israel Medical Center

http://schwannomasurvivorsandfighters.blogspot.com/2014/01/a-q-and-with-dr-allen-maniker-chief-of.html

 Q and A with Dr Alfred Ogden, Columbia University Medical Center

http://schwannomasurvivorsandfighters.blogspot.com/2014/02/q-and-with-dr-alfred-ogden-columbia.html

A Q and A with Dr Christopher Moertel, Pediatric Neuro-oncologist at University of Minnesota Masonic Children's Hospital

http://schwannomasurvivorsandfighters.blogspot.com/2015/07/a-new-q-and-with-dr-christopher-moertel.html

Q and A on Schwannomas with Dr. Bohdan Chopko, from Stanford University Medicine

http://schwannomasurvivorsandfighters.blogspot.com/2014/10/q-and-on-schwannomas-with-dr-bohdan.html

"Where do You See The Future of Schwannoma Treatment and Research Going?" Three Neurosurgeons Weigh in on the Question

http://schwannomasurvivorsandfighters.blogspot.com/2014/11/where-do-you-see-future-of-schwannoma.html

Acoustic Neuroma Pages

What to Ask the Doctor if You Have Just Been Diagnosed With Acoustic Neuroma

http://schwannomasurvivorsandfighters.blogspot.com/2015/11/what-to-ask-doctor-if-you-have-just.html

How Long Before I Feel Better After Acoustic Neuroma / Vestibular Schwannoma?

http://schwannomasurvivorsandfighters.blogspot.com/2015/07/how-long-before-i-feel-better-after.html

Schwannoma Case Study # 10, Scott Sarah and The Story of His Acoustic Neuroma / Vestibular Schwannoma

http://schwannomasurvivorsandfighters.blogspot.com/2014/09/schwannoma-case-study-10-scott-sarah.html

Schwannoma Case Study #8, Kayla Collins and her Battle with Acoustic Neuroma / Vestibular Schwannoma

http://schwannomasurvivorsandfighters.blogspot.com/2014/06/schwannoma-case-study-8-kayla-collins.html

A Letter with Info on the After-Surgery Phase, for Acoustic Neuroma Survivors

http://schwannomasurvivorsandfighters.blogspot.com/2015/04/a-letter-of-advice-on-after-surgery.html

Cognitive Difficulties ARE Sometimes Mentioned After Acoustic Neuroma / Vestibular Schwannoma Surgery

http://schwannomasurvivorsandfighters.blogspot.com/2016/02/cognitive-difficulties-are-sometimes.html

Paranasal Schwanoma Articles

Case Study # 23 , Dani Thomas Shares the Story of Her Paranasal Sinus / Sphenoid Schwannoma

http://schwannomasurvivorsandfighters.blogspot.com/2016/02/case-study-23-dani-thomas-shares-story.html

 Vagal Schwannoma Articles

Case Study # 17, Lori Cramton Tells us About her Vagal Schwannoma (Tenth Cranial Nerve) Removal

http://schwannomasurvivorsandfighters.blogspot.com/2015/05/case-study-17-lori-crampton-tells-us.html

Intracapsular Enucleation, A Short Blog on a Promising Treatment - Especially for Vagal Schwannomas

http://schwannomasurvivorsandfighters.blogspot.com/2015/05/intracapsular-enucleation-short-blog-on.html

Trigeminal Schwannoma Articles

Schwannoma Case Study #9, Lauren Findlay and the Story of Her Trigeminal Schwannoma

http://schwannomasurvivorsandfighters.blogspot.com/2014/08/schwannoma-case-study-9-lauren-findlay.html

Orbital Schwannoma Articles

Case Study # 16, Susan Hicks and the Story of Her Left Orbital Schwannoma

http://schwannomasurvivorsandfighters.blogspot.com/2015/05/case-study-16-susan-hicks-and-story-of.html

Cervical Schwannoma Articles

How Long Before I Felt Better After Cervical Schwannoma?

http://schwannomasurvivorsandfighters.blogspot.com/2015/07/how-long-before-i-felt-better-after.html

Case Study # 22, Diane Schuler and Her Experience with Cervical Schwanoma

http://schwannomasurvivorsandfighters.blogspot.com/2016/01/case-study-22-diane-schuler-and-her.html

Thoracic Schwannoma Articles

How Long Before I Felt Better After Thoracic Spinal Schwannoma?

http://schwannomasurvivorsandfighters.blogspot.com/2015/07/how-long-before-i-felt-better-after_31.html

Schwannoma Case Study #11, Gina Forde and the Story of Her Thoracic Spinal Cord Schwannoma

http://schwannomasurvivorsandfighters.blogspot.com/2014/09/schwannoma-case-study-11-gina-forde-and.html

Lumbar Schwannoma Articles

How Long Before I Feel Better After Lumbar Spinal Schwannoma?

http://schwannomasurvivorsandfighters.blogspot.com/2015/08/how-long-before-i-feel-better-after.html

Schwannoma Case Study # 12, Carol Zwick and the Story of Her Lumbar Spinal Cord Schwannoma

http://schwannomasurvivorsandfighters.blogspot.com/2014/09/schwannoma-case-study-12-carol-zwick.html

Schwannoma Case Study # 1, Lumbar Schwannoma at L 5 S 1 , with Regrowth, Requiring Three Surgeries

http://schwannomasurvivorsandfighters.blogspot.com/2014/03/schwannoma-case-study-1-lumbar.html

Schwannoma Case Study # 6, Bart Johnson, Schwannoma Located on the Posterior Side of L4 - Schwannoma not yet Removed

http://schwannomasurvivorsandfighters.blogspot.com/2014/05/schwannoma-case-study-6-bart-johnson.html

 Schwannoma Case Study # 7, Anonymous Person with Schwannoma at L2-L3, with Partial Removal

http://schwannomasurvivorsandfighters.blogspot.com/2014/05/schwannoma-case-study-7-anonymous.html

Sacral Schwannoma Articles

Case Study #24, an Anonymous Person with Pre-Sacral Schwannoma

http://schwannomasurvivorsandfighters.blogspot.com/2016/02/case-study-24-anonymous-person-with-pre.html

Retreoperoneal Schwannoma Articles

Schwannoma Case Study #15, Tina Baker, and the story of her Retroperitoneal Schwannoma

http://schwannomasurvivorsandfighters.blogspot.com/2015/04/schwannoma-case-study-15-tina-baker-and.html

How Long Before I Feel Better After a Schwannoma in the Torso?

http://schwannomasurvivorsandfighters.blogspot.com/2015/08/how-long-before-i-feel-better-after_16.html

Brachial Plexus Schwannoma Articles

Case Study # 14 Nick Nichols and the Story of his Brachial Plexus Schwannoma

http://schwannomasurvivorsandfighters.blogspot.com/2014/12/case-study-14-nick-nichols-and-story-of.html

How Long Before I Feel Better After a Schwannoma in the Torso?

http://schwannomasurvivorsandfighters.blogspot.com/2015/08/how-long-before-i-feel-better-after_16.html

Articles Dealing With Schwannomas Located in an Arm or Leg

How Long Before I Feel Better After a Schwannoma in an Arm or Leg?

http://schwannomasurvivorsandfighters.blogspot.com/2015/08/how-long-before-i-feel-better-after_4.html

Case Study # 19, Carol Jackson and the Story of Her Sciatic Nerve Schwannoma

http://schwannomasurvivorsandfighters.blogspot.com/2015/06/case-study-19-carol-jackson-and-story.html

 Case Study # 18, Anonymous Person With Deep Peroneal Nerve Schwannoma

http://schwannomasurvivorsandfighters.blogspot.com/2015/06/case-study-18-anonymous-person-with.html

Case Study # 21, Recovery from Schwannomas Removed From the Back of the Knee

http://schwannomasurvivorsandfighters.blogspot.com/2015/09/case-study-21-recovery-from-schwannomas.html

Schwannoma Case Study #5, Tiffany Heronimus, Schwannoma in the Left Elbow

http://schwannomasurvivorsandfighters.blogspot.com/2014/04/schwannoma-case-study-5-tiffany.html

 Schwannoma Case Study # 13, Susan Chapman Ruggiero & The Story of a Schwannoma in her Foot

http://schwannomasurvivorsandfighters.blogspot.com/2014/12/schwannoma-case-study-13-susan-chapman.html

Articles on Schwannomatosis

How Long Before I feel better? - Views on Schwannomatosis

http://schwannomasurvivorsandfighters.blogspot.com/2015/08/how-long-before-i-feel-better-views-on.html

Schwannoma Case Study # 3, Sean Anderson Tells us About his Fight With Schwannomatosis

http://schwannomasurvivorsandfighters.blogspot.com/2014/03/schwannoma-case-study-3-sean-anderson.html

Schwannoma Case Study #4, Another Case Study of a Person Confirmed with Schwannomatosis

http://schwannomasurvivorsandfighters.blogspot.com/2014/04/schwannoma-case-study-4-another-case.html

Other Important Schwannoma Articles

Case Study # 20, Recovery from Schwannomas at C 7 and at T 8

http://schwannomasurvivorsandfighters.blogspot.com/2015/09/case-study-20-recovery-from-schwannomas.html

Schwannoma Case Study # 2, Kris Sres, with Posterior Mediastinal Schwannoma, Lower Esophagus

http://schwannomasurvivorsandfighters.blogspot.com/2014/03/schwannoma-case-study-2-kris-sres-with.html

How Long Before I Feel Better? Views on Recovery from Various Schwannomas

http://schwannomasurvivorsandfighters.blogspot.com/2015/08/how-long-before-i-feel-better-views-on_25.html

How Did a Schwannoma Feel Different than Regular Back Pain?

http://schwannomasurvivorsandfighters.blogspot.com/2012/10/how-did-schwannoma-feel-different-than.html

A Second Perspective - How Does a Schwannoma Feel Different than Normal Back Pain? A 2nd Answer, from a Person Currently Fighting a Schwannoma

http://schwannomasurvivorsandfighters.blogspot.com/2012/10/how-does-schwannoma-feel-different-than.html

Recovery is Not a Two Lane Highway

http://schwannomasurvivorsandfighters.blogspot.com/2012/11/recovery-is-not-two-lane-highway.html

Progress Report After Schwannoma Surgery, Four Months Later, by Jamie Dubinsky

http://schwannomasurvivorsandfighters.blogspot.com/2013/03/progress-report-after-schwannoma.html

The Time Before Schwannoma Surgery, by Vitor De Souza Carneiro

http://schwannomasurvivorsandfighters.blogspot.com/2013/03/the-time-before-schwannoma-surgery-by.html

Sailing the High Seas - The Crossing to Recovery, by Vitor De Souza Carneiro

http://schwannomasurvivorsandfighters.blogspot.com/2013/04/sailing-high-seas-crossing-to-recovery.html

Featured Medical Papers on the Study of Schwannomas

http://schwannomasurvivorsandfighters.blogspot.com/2015/12/featured-medical-papers-on-study-of.html

Schwannomas – Articles Dealing with Emotional and Mental Support

Schwannomas, a Story of Discounted Tumors and Misunderstood Pain

http://schwannomasurvivorsandfighters.blogspot.com/2015/04/schwannomas-story-of-discounted-tumors.html

A Q and A with Dr. Anne Barnes, Psychiatrist, on the Mental Aspects of Dealing With Schwannomas & Chronic Pain

http://schwannomasurvivorsandfighters.blogspot.com/2014/12/a-q-and-with-dr-anne-barnes.html

We Don't Play Doctor - But We DO Have a Role

http://schwannomasurvivorsandfighters.blogspot.com/2016/04/we-dont-play-doctor-but-we-do-have-role.html

Schwannomas and Anxiety

http://schwannomasurvivorsandfighters.blogspot.com/2014/10/schwannomas-and-anxiety.html

The First Time I Have Heard the Word Schwannoma on the Big Screen, Thoughts on the Film "50 / 50"

http://schwannomasurvivorsandfighters.blogspot.com/2015/06/the-first-time-i-have-heard-word.html

Living with the Axe Over Your Head

http://schwannomasurvivorsandfighters.blogspot.com/2012/11/living-with-axe-over-your-head.html

Moral Support, Surviving Schwannomas With the Help of Family and Friends

http://schwannomasurvivorsandfighters.blogspot.com/2013/05/moral-support-surviving-schwannomas.html

Having a Tumor and Chosing Not to Have it Removed

http://schwannomasurvivorsandfighters.blogspot.com/2013/02/having-tumor-and-chosing-not-to-have-it.html


If you would like to contribute your experience to assist others with Schwannomas - or if you would like to do a case study, please feel free to email: neilmyersart@gmail.com, and let me know your story! - Neil 

A Proposal - The Schwannoma Statistics Project

Hello everyone!  Today I wanted to outline an idea that has come about as a result of my work with the Schwannoma Survivors & Schwannoma Fighters group.  A great many people who have suffered with Schwannomas have endured a lot of confusion - and even have gone through treatment still with many questions unanswered.  So today, I wanted to propose a worthy idea to any medical institution or university that may wish to contribute to our knowledge on Schwannomas...

I would like to propose a "Schwannoma Statistics Project."  I would like to see a medical facility or university create and monitor a universal database on Schwannoma statics.  It would be my hope that such a medical facility or university would create a questionnaire for Schwannoma survivors that would glean as much medical information about Schwannomas as possible - from the many survivors that we have spoken with on our page and elsewhere.   And the answers would supply data for the database.

It would be my hope that:

1)  A "Schwannoma Statistics Project" ( or SSP ) would gather accurate, universal data that would allow people to answer basic questions like "How common are Schwannomas?"  or " What are the average sizes of Schwannomas in various parts of the body?"  or "How common are they in the population?"

2)  I would propose that any SSP should share its data with other research and medical facilities that are seeking to learn more about Schwannomas.

3)  I would hope that specialized questionnaires may be created to service data relating to the condition of Schwannomatosis, and that as much data on Schwannomatosis would be acquired as possible - with a view towards devising new treatments and new understanding of the condition.

4)  I would hope that the SSP would help supply data for any medical specialist writing papers on Schwannomas.

5)  I would hope that the SSP would perhaps be able to glean enough data to try to actually pinpoint the usually unknown causes of single Schwannomas.  And perhaps even supply information for future genetic testing which may help establish if there are any genetic abnormalities or mutations that would result in a person developing a single schwannoma - rather than Schwannomatosis.

6)  I would hope that the SSP could possibly help determine if there are any environmental factors that help contribute to having a Schwannoma - which are as yet unknown.

I invite any knowledgeable medical practitioner or specialist to consider creating such a database.  I feel certain that it would greatly help the medical establishment in future research, and ultimately future treatments for those with Schwannomas.

Anyone is free to take this idea and run with it.  And myself, and many others at the SS and SF page will happily support any effort to make these tumors better understood.

- Neil
Coordinator of the SS and SF page