Hi everyone! As things have evolved since the Schwannoma Survivors & Schwannoma Fighters page was founded in late 2012, one phenomenon I have noticed that even though there were almost NO other Facebook pages at the time I founded the Schwannoma Survivors page - now there are a number of them and the trend is that they deal with certain kinds of Schwannomas specifically. As I have thought about the issue I have realized that this is only a natural evolution of people with particular kinds of Schwannomas, banding together groups of individuals with their particular conditions - and since nobody should by any means ever be greedy with helpful information; I have decided that what I will be doing in the future is assisting in channeling people to the particular groups that most specifically meet their needs. Since the Schwannoma Survivors page is a general information Schwannoma site, we will continue the same mission of trying to provide easy to understand, helpful articles and input from physicians - but we won't hesitate in the future to refer people on to groups, most especially Facebook groups, that may assist them with very specific kinds of Schwannoma.
The one caution I would put forward however is that I can by no means vouch for the kinds of information standards the other sites might have. With the Schwannoma Survivors page I have made a concerted effort to focus on accepted medical science, personal stories, and input from physicians - but I simply can't vouch for the accuracy of the information that you may receive on these sites...but in the event that knowing about them is useful to you and helps your situation, here are some of them... Neil
"Schwannoma Recovery Group"
https://www.facebook.com/groups/52469093739/
"Schwannomas of the Head / Neck"
https://www.facebook.com/groups/vagalschwannoma/
"Acoustic Neuroma"
https://www.facebook.com/groups/78633792319/
"Acoustic Neuroma Association or 'ANA' "
https://www.facebook.com/ANAssociation?fref=ts
"Spinal Cord Tumor Association or 'SCTA'"
https://www.facebook.com/groups/48390166351/
"Schwannomatosis and Neurofibromatosis"
https://www.facebook.com/groups/251939418164422/
"Vagal Schwannoma Survivors"
https://www.facebook.com/silently.strong
"USC Acoustic Neuroma Center"
https://www.facebook.com/USCAcousticNeuromaCenter
*This link to the USC Acoustic Neuroma Center didn't want to work...search it on FB if there is any issue with the link..
* This page will be updated at new groups are formed! Or feel free to message us at the Schwannoma Survivors & Schwannoma Fighters Page if you would like to suggest a group for this list!
