Tuesday, January 21, 2014

A Q and A with Dr Allen Maniker, Chief of Neurosurgery at Beth Israel Medical Center

Hello everyone!  I'm very pleased to offer this new five question Q and A with Dr Allen Maniker, Chief of Neurosurgery at Beth Israel Medical Center, New York, New York.  Dr Maniker was kind enough to take a moment of his time to answer some questions that have come up directly from our group, Schwannoma Survivors & Schwannoma Fighters.  You can read his full profile and credentials at http://www.docnet.org/physicians/phys_bios.aspx?phys_id=11711 .

Dr Maniker did wish to express that though he has contact information online, any medical questions relayed directly to him would require an appointment and direct consultation.  Something of an exception was made for our group as he wanted to be of service in helping us and others understand their Schwannomas and treatments.  So if you wish to have your specific case reviewed in any way, please contact his office for a consultation.

Here is the Q and A, and we thank Dr. Maniker for his time and graciousness…his answers to the questions are in blue.


1) Several people on our page have mentioned that it had been discovered that they had a Schwannoma, but that some physicians that they have consulted have insisted that the Schwannoma is NOT the source of their pain.  (One gentleman recently had this very thing happen.  He has a Schwannoma in the psoas muscle and is showing symptoms of pain and weakness).  Can you offer any suggestions, from a surgeon’s perspective, as to what may be the prudent course of action if a patient finds that they are left with such differing opinions from the physicians they consult?

Be very sure that the surgeon you have consulted has experience with peripheral nerve sheath tumors, if not, seek one out. If there are differing opinions then consult up to 3 or 4 surgeons to see if there is a consensus that emerges.

2) We have a person on the page who has been diagnosed with a Schwannoma (acoustic neuroma), and they have lost most of the hearing in their right ear.  They have been told to go home and enjoy life – however the person is very worried because no biopsy has been performed.  The person would like to know what are some of the criteria for making the determination that the patient has a Schwannoma (not cancer or another tumor) when no biopsy has been performed?

The criteria for identification of acoustic neuroma are primarily clinical and radiographic, i.e. the way the tumor appears on the MRI. The possibilities of types of tumors in the location of an acoustic neuroma are relatively few and generally benign and therefore no biopsy can often be justified. The individual should discuss his concerns with his surgeon directly.

3) Is there such a thing as a stagnant, non-growing Schwannoma?  Every indication that I have heard (this is Neil, the page coordinator writing) is that though they exhibit different growth rates and require monitoring – that the overall tendency is for them to grow.  Can you shed any light on how Schwannomas grow…if they are ever known to stagnate, and if you also if you validate the trend that has been expressed to me by several physicians – that Schwannomas have an overall tendency to grow?

Anything can do anything is a saying we have. Some schwannoma may grow; some may stay stable in size. In the peripherally located schwannoma (i.e. not an acoustic neuroma) if there is enlargement one must be concerned for malignant transformation (i.e. changing from benign to malignant) which is a rare occurrence but an indication for removal of the tumor.

4) Is Schwannomatosis a common diagnosis among Schwannoma patients that you have treated?  Though we understand that you can’t speak for all cases whatsoever – could you put an estimation on what percentage of your Schwannoma patients that you have seen in your career were believed to have Schwannomatosis?  Also can you shed any light on the number of Schwannoma patients you have seen that have only one tumor, and no recurrence? 

Schwannomatosis is a rare, genetic condition. I have seen a handful of such patients, keeping in mind that it was only described as a condition in the mid 1990’s. By far the majority of schwannoma are isolated single occurrences

5)  We have a person on the page who learned that during surgery for the removal of a Schwannoma in their arm, that the nerve was stretched and in the period of recovery after surgery the person has had tremendous pain.  Can you suggest any advice for that person – who is currently trying very hard to rehab from the surgery, but pain is intense and proving to be a large obstacle?

Generally such pain is treated medically with something such as Neurontin. The patient should be evaluated by a pain management specialist if this medical treatment is unsuccessful.




*Disclaimer: Dr. Maniker and Beth Israel Medical Center assume no liability whatsoever for the comments or advice offered in the content of this blog.  Dr. Maniker has offered his advice generally on the issues relating to treatment of Schwannomas - however Dr Maniker and the Schwannoma Survivors & Schwannoma Fighters group always insist that a person should make all major medical decisions in consultation with one's own physician.

Wednesday, January 1, 2014

Recommended Physicians Who Have Taken Good Care of us, from the Schwannoma Survivors

Hello Schwannoma Survivors!

I have had a goal to start a sort of "Recommended Physicians" list on our blog.  One of the most common questions that we get on the Facebook page is "Do you know of a good surgeon who deals with these issues?" in this or that city or state.  In the United States at least this is a difficult proposition to compile such a list, because of the size of our country and the vast number of hospitals and facilities where neurosurgery is practiced.  However my idea was that we COULD simply create a list - one which could be amended and added to, of physicians who have treated us well and who have given Schwannoma Survivors the best possible results, considering all the challenges that we have associated with these tumors.  

I will be the first to say that these are simply recommendations; they are not verdicts on the entire career and abilities of the surgeons in question.  Neurosurgery, as many of you know, is a very complicated business and nobody - not myself or anyone else can guarantee perfect results or spectacular outcomes. But I thought we can indeed tell you which surgeons treated members of our group well - and delivered good enough results such that our group members would recommend them to someone else seeking treatment.  

Here is the list we have, which we will expand as more suggestions get sent to us:

(*Note,  In order to more specifically point people to Acoustic Neuroma specialists, we have created a similar "Recommended Physicians" page for those who need to find an experienced Acoustic Neuroma Neurosurgeon; you can find that list at :

http://schwannomasurvivorsandfighters.blogspot.com/2015/09/physicians-who-have-taken-good-care-of.html  .

 We are currently arranging the two lists and will be moving most ENT listed specialists over to the Acoustic Neuroma list.)
_____________________________________________________________

Dr Thomas Scully (Location, Arizona, United States)

Northwest Neurospecialists, Tucson, Arizona

Phone: (520) 742-7890


Notes for Dr Scully: Dr Scully was the surgeon that removed my Schwannoma in 2009 
(Neil the creator of the blog and FB page)  He is an excellent surgeon, a great person, and his staff
were all exceptional.  Would highly recommend him.

____________________________________________________________

Dr Alfred T Ogden (Location, New York, United States)



Department of Neurological Surgery





Neurological Institute

New York, New York 

Phone: (212) 305-0795
http://www.columbianeurosurgery.org/doctors/alfred_ogden/
Email

_____________________________________________________________



Dr Mark H Bilsky (Location, New York, United States)

Memorial Sloan Kettering Cancer Center
New York, New York



Phone: 212.639.2275

______________________________________________________________

Dr Allen H. Maniker (Location, New York, United States)

Beth Israel Medical Center
New York


Phone: (212) 844-8383



_______________________________________________________________

Dr Raj Murali  (Location, New York, United States)

Westchester Medical Center
Valhalla, New York

http://www.westchestermedicalcenter.com/rajmuralimdfacs

Phone: (914) 493-7000

________________________________________________________________

Dr Eric Elowitz  (Location, New York, United States)

Weill Cornell Physicians
New York

http://www.weillcornell.org/physician/eelowitz/

Phone: 212-746-2870

_________________________________________________________________

Dr Michael Cho  (Location, New York, United States )

Mid Hudson Nuerological Specialists
Poughkeepsie, New York


http://michaelhchomd.com/mid-hudson-neurosurgical-specialist-pc-biography.htm

_________________________________________________________________

Dr Ankesh Negam

Albany Med, Albany, New York
http://www.amc.edu/PhysicianDirectory/index.cfm?event=showPhysicianDetail&PRACT_ID=4833

Phone: 518.262.0940
FAX: 518.262.4926
_________________________________________________________________

Dr Allan D Levi  (Location, Florida, United States)

University of Miami Hospital
1400 N.W. 12th Ave
Miami, Florida 33136



Dr Roberto C Heros  (Location, Florida, United States)

University of Miami Health System
Miami, Florida


Phone: 305.243.6946
FAX: 305.243.3247
_________________________________________________________________

Dr Allan Belzberg

The Johns Hopkins Hospital, Baltimore, Maryland

http://www.hopkinsmedicine.org/profiles/results/directory/profile/0005517/allan-belzberg

(Contact phone numbers Listed on the link above )

___________________________________________________________________

Dr Jean-Paul Wolinsky 

The Johns  Hopkins Hospital Baltimore, Maryland

http://www.hopkinsmedicine.org/profiles/results/directory/profile/0019298/jean-paul-wolinsky 


Phone: 410.955.4424

FAX: 410.502.3399
  • _________________________________________________________________

Dr Jaishri Blakeley  (Location, Maryland, United States)
(Neurologist) Johns Hopkins Medicine
Baltimore, Maryland

http://www.hopkinsmedicine.org/profiles/results/directory/profile/0017623/jaishri-blakeley

Phone: 410-502-6732
________________________________________________________________

Dr Jon Weingart

The John Hopkins HospitalBaltimore, Maryland

https://www.hopkinsmedicine.org/profiles/results/directory/profile/0004228/jon-weingart
Phone: 410.614.3052

_________________________________________________________________

Dr. George Jallo (Florida, United States )

Johns Hopkins All Children’s Hospital 
Director,Institute Brain Protection Sciences


Phone: 410-955-7851

_________________________________________________________________



Dr C Rory Goodwin, PhD

DukeHealthDurham, North Carolina

https://www.dukehealth.org/find-doctors-physicians/c-rory-goodwin-md-phd
Phone: 919.684.6273 FAX: 919.668.1221

_______________________________________________________________
Dr Richard Lytle

Mission Hospital 
Asheville, North Carolina


Phone: 828.255.7776

FAX: 828.274.7855

_________________________________________________________________

Dr S. Scott Lollis  (Location, New Hampshire, United States)

Dartmouth-Hitchcock Medical Center
Lebanon, New Hampshire

http://cancer.dartmouth.edu/neuro_brain/teamprofile/57223/S_Scott_Lollis_MD

Phone: (603) 650-8730
___________________________________________________________________

Dr Tomothy Lucas (Location, Pennsylvania, United States )

University of Pennsylvania 

http://www.pennmedicine.org/providers/profile/timothy-lucas

Phone: 800- 789- 7366

__________________________________________________________________

Dr David Wright

Allegheny Hospital
Pittsburgh, Pennsylvania



Phone: 412.359.8850
__________________________________________________________________

Dr James F Pingpank

UPMC Passavant-McCandlessPittsburgh, Pennsylvania

http://hillman.upmc.com/find/providers/james-pingpank-59683
Phone: 412.692.2852
___________________________________________________________________

Dr Eric M Horn, PhD

IU Health Neuroscience Center
Indianapolis, Indiana

https://www.goodmancampbell.com/physicians/eric-m-horn
Phone: 317.396.1300
__________________________________________________________________

Dr Robert Spinner  (Location, Minnesota, United States )

Mayo Clinic
Rochester, Minnesota

http://www.mayoclinic.org/biographies/spinner-robert-j-m-d/bio-20054099

Phone: 507-538-3270

___________________________________________________________________

Dr William Krauss  (Location, Minnesota, United States )

Mayo Clinic
Rochester, Minnesota


http://www.mayoclinic.org/biographies/krauss-william-e-m-d/bio-20054302 


Phone: 507.284.2511

___________________________________________________________________

Dr Anthony Burrows

Mayo Clinic, Mankato, Minnesota

https://mayoclinichealthsystem.org/providers/anthony-burrows-md
Phone: 800.327.3721

__________________________________________________________________
Dr Raouf Mikhail

Hurley Medical Center 
Flint, Michigan


Phone: 810.238.1118

FAX: 810.238.9849
___________________________________________________________________

Dr Samuel Borsellino (Location, Ohio, United States )


Cleveland Clinic
(Hillcrest Hospital, Mayfield Heights, Ohio)


Phone: 216.636.5860

________________________________________________________________________


Dr Nicholas Bambakidis (Location, Ohio, United States )

University Hospitals Case Medical Center
Cleveland, Ohio


Phone: 216.844.3192

____________________________________________________________________

Dr Bradley H Koffman (Location, Kansas, United States)

Menorah Medical Center 
Overland Park, Kansas 


Phone: 913.498.6270 
FAX: 913.498.6619
___________________________________________________________________


Dr Douglas E Anderson

Loyola Medicine
Chicago, Illinois


Phone: 708.216.9000
FAX: 708.216.4948

____________________________________________________________________

Dr Dachling Pang  (Location, California, United States)

Dameron Hospital 
Oakland, California 

http://health.usnews.com/doctors/dachling-pang-2737 


Phone: 510.752.1000
_________________________________________________________________


Dr Praveen Mummaneni
UCSF Department of Neurological SurgerySan Francisco, California
http://neurosurgery.ucsf.edu/index.php/about_us_faculty_mummaneni.html
Phone: 866.81.SPINE
____________________________________________

Dr Shuer Lawrence (Location, California, United States)

Stanford University
(Stanford Hospital and Clinics, Palo Alto, California)


Phone: 650.723.6469
FAX: 650-725-8279
Email: lshuer@stanford.edu

_________________________________________________________________

Dr. Patrick C. Hsieh  (Location, California, United States )


(Practices in Southern California USC, etc) 

Contacts listed on link
_________________________________________________________________

Dr John C. Liu (Location, California, United States )

(Practices in Southern California, USC Keck Hospital, and Beverly Hills)

Contacts listed in link

__________________________________________________________________

Dr. Bohdan Chopko  

Ohio Neurological Physicians

https://www.ohiohealth.com/find-a-doctor/profile/4420/Bohdan-W-Chopko



Email: bchopko@stanford.edu

*Note on Dr Chopko; he has received very glowing reviews from people who said that he was an excellent surgeon, and truly a very kind and understanding person.  He came to our attention because he successfully removed a 9 POUND Schwannoma from a man.  Also, another lady wrote to say she had travelled from out of state to have him remove her Schwannoma, and that he, his staff, and his treatment were top notch.

_____________________________________________________________________


Dr Robert Spetzler

St. Joseph’s Hospital and Medical Center
Phoenix, Arizonia


Phone: 602.406.3489

FAX: 602.406.4402

_________________________________________________________________

Dr Andrew Ko

UW MedicineSeattle, Washington

https://www.uwmedicine.org/bios/andrew-ko
Phone: 206.598.3300
FAX: 206.598.6494
_______________________________________________________________

Dr Alex Mohit (Location, Washington state, United States)

CHI Franciscan Health
Gig Harbor, Washington


http://www.chifranciscan.org/PhysicianDetails.aspx?physicianID=636062 


Phone: 253.274.7505
FAX: 253.274.7995
_________________________________________________________________

Dr James L. Netterville  (Location, Tennessee, United States )

http://www.vicc.org/dd/display.php?person=james.netterville


Phone: 615-322-6180

Physicians: 1-877-936-8422

*Note on Dr. Netterville, Dr. Netterville comes highly recommended as a specialist in treating Vagal Schwannomas.  
His use of "Intracapsular Enucleation " surgical treatment has produced excellent results that make his name among the leading surgeons practicing treatment of head and neck tumors, particularly Vagal Schwannomas.
_______________________________________________________________________________


Dr Daniel Refai (Location, Georgia, United States )

Emory Ortho and Spine Center
Atlanta, Georgia


http://www.emoryhealthcare.org/physicians/r/refai-daniel.html 


Phone: 404.778.7000
_______________________________________________

Dr Jason Weaver (Location, Tennessee, United States)

Semmes-Murphy Neurologic and Spine Institute
Memphis, Tennessee 

https://www.semmes-murphey.com/contact_us.php

Phone: (901) 522-7700

_________________________________________________________________

Dr Lucien Nedzi

UT Southwestern Medical CenterDallas, Texas

https://utswmed.org/doctors/lucien-nedzi/
Phone: 214.645.8300
_________________________________________________________________

Dr Andrew C Roeser ( Location, Texas, United States)

Neurosurgical Group of Texas
Houston, Texas

http://www.neurosurgery-texas.com/andrew-c-roeser-md.html 


Phone: 713.790.1211

_________________________________________________________________

Dr Arnold B Vardiman

Neurological Associates of San Antonio
San Antonio, Texas

https://sahealth.com/physicians/profile/Arnold-B-Vardiman-MD
Phone: 210.477.1956
________________________________________________________________

Dr Kevin O. Lillehei (Location, Colorado, United States) 

University of Colorado Hospital
Aurora, Colorado


http://www.ucdenver.edu/academics/colleges/medicalschool/departments/Neurosurgery/faculty/clinicalfaculty/Pages/lillehei.aspx 


Phone: 303.724.2305
_________________________________________________________________

Dr Rudy Kovachevich (Location, Colorado, United States)

Hand Surgery Associates
Englewood, Colorado

http://www.hsacolorado.com/rudy-kovachevich/

Phone: 303-744-7078

________________________________________________________________________

Dr William Couldwell (Location, Utah, United States )

University of Utah Health Care
Salt Lake City, Utah

http://healthcare.utah.edu/fad/mddetail.php?physicianID=u0311081


Phone: (801) 585-6065
___________________________________________

Dr Rajiv Midha             (Location, Calgary, Alberta, Canada )

Foothills Medical Centre, Calgary
Contact information on the link below:

https://www.ucalgary.ca/dcns/about-dcns/facultymembers/midha-rajiv

_________________________________________________________________

Dr Andrew Lee  (Location, New Westminster, Canada - near Vancouver)

Contact information on the link below:

https://neurosurgery.med.ubc.ca/faculty/faculty-spotlight/andrew-lee-md-frcsc/

Phone: 604.526.8979
FAX: 604.526.7317

________________________________________________________________

Dr Darren Biberdorf.       (Location, Victoria, BC, Canada )

Contact information on the link below:

http://south-island.fetchbc.ca/service.html?i=724
________________________________________________________________

Dr Richard Reid. (Location, Victoria, BC, Canada )

Contact information on the link below:

https://neurosurgery.med.ubc.ca/faculty/faculty-spotlight/richard-reid-md-frcsc/

________________________________________________________________

Mr Ashok Paul. (Location, United Kingdom)

Manchester University NHS Foundation TrustManchester, United Kingdom

https://www.spirehealthcare.com/consultant-profiles/mr-ashok-paul-c3611975/
Phone: 0161 276 4037
_______________________________________________________________

Mr. Vladimir Petrik  (Location, United Kingdom )                                                                            

Consultant Neurosurgeon
Queen Elizabeth Hospital
Birmingham, England

Phone: 0121 371 6894

Extension: 0121 371 6894

_________________________________________________________________

Dr Nick Thomas  ( Location, United Kingdom )


Kings College Hospital, London, UK


http://theharleystreetclinic.com/neuroscience-consultant/nick-thomas

Phone: UK  020 7034 8709

___________________________________________________________________


Mr Dirk Strauss (Location, United Kingdom )

Consultant Surgeon
The Royal Marsden Hospital
London, England



Phone: 020 7811 8111
_________________________________________________________________

Mr Francis Johnston (Location, United Kingdom )

St. George’s Hospital / Parkside Hospital
Wimbledon, United Kingdom



Phone: 020 8971 8000
_______________________________________________________________

Dr Bernhard Meyer (Location, Germany)

Technische Universität München - Munich, Germany

(Click on Link)



_________________________________________________________________


Dr Benjamin Jonker (Location, Australia) 

Royal Prince Alfred Hospital 
Sydney, Australia 


Phone: 02 6362 0711

___________________________________________



Dr Erica Jacobson (Location, Australia )

Sydney’s Children Hospital 
Randwick, Australia

Phone: +61 2 9326 6140

________________________________________________________________


Dr Craig Timms ( Location, Australia )


Melbourne, Australia

Suite 2, Lvl 8, Epworth Centre, 32 Erin St, Richmond, VIC, 3121

Read more: http://www.startlocal.com.au/health/neurosurgeons/vic_melbourne/#ixzz35N4pVK3x

________________________________________________________________

Dr Su Jang Wen (Location, Singapore)

Gleneagles Medical Centre
Singapore 258499

http://www.singaporedoc.com/index.php/cardiothoracic-surgeon/dr-su-jang-wen.html 


Phone: 6473 3930
_______________________________________________________________



These are the physicians we have who received direct recommendations from our group members.  This list will be expanded as more people share with us good experiences they've had with particular surgeons.  

If anyone who has had treatment for a Schwannoma and feels their physician is worthy of a recommendation for others who are currently seeking treatment, feel free to contact us at the Facebook page "Schwannoma Survivors & Schwannoma Fighters" 



(Disclaimer: advice shared on this blog or on our related Facebook page cannot be a replacement for proper medical treatment by a trained physician.  Speak with a Doctor before making any medical decisions.)